Saturday, July 17, 2010

Cardiologist Visit

Dear Family and Friends:

We saw the cardiologist on Thursday for our routine visit.  There had been some discrepancies on Emory's weight at our last appointment......the number that was written down and the number we were told were not matching up.  They measure in kilograms, which makes it challenging for my brain.  He weighed in at 9 pounds 6 ounces, which means that he has only gained a couple of ounces in 2 weeks.  Ideally speaking, newborns should gain an ounce a day.  The dr. told us that she would be thrilled if he gained half an ounce a day.  Although we are feeding him the highest calorie formula possible, every 3 hours, he still isn't gaining weight.  All of this is a result of his heart condition and the DiGeorge Syndrome.  His heart works so hard for him to eat that as soon as he eats it, the calories burn off because of his heart beating so fast.  His reflux is also about the same.  He's thrown up a lot in the last couple of days and every day is different......regardless of what we do or don't do.

We are currently at my mom's in TN.  My dad had his annual board meeting for the ministry and we came up for that.  The boys are having a blast and Emory is being held a lot.  My poor sister has been thrown up so much and the washing machine never stops!  I'm going to have to de program my other two boys when we get back to GA.  They've had their cousins undivided attention for several days now and are loving it! 

Hope everyone is having a great weekend and has a blessed Sunday.

Take Care,

Twila

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