Friday, July 30, 2010


Dear Family and Friends:

Things change here around the clock.  We still don't have a definite date for surgery.  As of right now, they have increased Emory's lasix to 3 doses a day rather than 2 doses a day.  He is still on the ng tube and is taking 3 bottle feeds a day.  However, I fed him one of his bottles a few minutes ago and he threw it up within 3 minutes.  We are only feeding him an ounce at each feeding with 2 teaspoons of rice cereal.  Supposedly, the cereal helps with his swallowing, but something else is going on that it comes up so fast. 

One person has told us that we will be in the hospital until surgery and one has told us that we may go home before surgery.  So, it's all up in the air right now.  We took a tour today of the CICU and it was very helpful and informational  Some things we do know for sure are that....

They cancelled 4 surgeries for today because of all the critical cases that had come in and because of how busy they are.  Mind you, there are children that come here from all over the state as well as the region for their heart surgeries.  Although Emory needs surgery too, his case is not critical.  And, it all depends on when the surgeons can get him scheduled.

The CICU has 24 beds and it is all open.  They are staffed for 19 and have a 1 to 1 ratio.  It is just one big open room with beds lined up.  There are certain hours of the day that no one is allowed at his bed side.  Otherwise, two people can be at his bed side when there is not a shift change.  This can be family, pastors, etc. which is good so that any family that comes in from out of town can go see him.  But, I was very thankful for the tour because now I have an idea of what Emory will look like after surgery.  Being in the NICU first has helped us some.

After surgery, he will be in the CICU for a couple of nights and then will go to the cardiac step down unit which is where he is now.  Of course, all of this depends on how his progress is after surgery.  He is resting right now and his room in right across from the nurses desk, so he is in good hands if we are not in the roomm with him.

Basically, we are in a holding pattern.  I will update facebook and the blog as soon as we know something.

Have a Great Weekend,


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