Dear Friends and Family:
So, we saw the cardiologist today and although overall the appointment went well, I didn't come out of there feeling like we had been accomplishing anything over the past three weeks. From the time we saw the cardiologist three weeks ago until now, Emory has not gained any weight. The dr. said that he looked good, but would still like to see him be gaining more weight. He felt as though it was a result of the heart issue, his reflux, and his DiGeorge syndrome combined - not one isolated issue. We will follow up with him in two weeks on July 15th and depending on Emory's weight gain, may discuss the possibility of doing surgery sooner than six months of age. Between now and then, we are trying different ways of feeding him to help with the reflux and him gaining weight. And, we will see the DiGeorge doctors on Wednesday, July 7th. They will help us have a better understanding of how to handle things presently and in the future regarding the heart issue, immune system, muscle growth and development, etc. In a nutshell, that's today's update......will update again soon. Have a great holiday weekend and be safe!